Does being rare mean to be ignored? Watch the heartbreaking experience of Tommy, a 22-year-old suffering from Hyperphenylalaninemia, standing out for people affected by rare diseases.
Tommaso Galluppi, a 22-year-old with a rare disease, is the official ambassador of a video with an extraordinary cinematographic power, that describe a surprising parallelism: the story of people and animals with no other choice but to live as “rarities”. While animal species at risk of extinction is something that attracts our attention and generates often conflicting emotions, ranging from tenderness to indignation, the image of a patient affected by one of the so-called rare diseases frequently receives little attention from the media and these diseases are still little known by the general public.
Tommaso brings to the screen an evocative analogy between two worlds, almost as if the animals have become “endorsers” in a sort of virtuous relay undee the claim that “To be rare like me is to be ignored”. A message intended to shake our consciences and invite us to reflect and open our eyes. Created by the agency Saatchi & Saatchi, directed by Roberto Saku Cinardi, photographed by Luca Esposito and produced by Al One, under the patronage of the Italian Federation for Rare Diseases, UNIAMO F.I.M.R. Onlus, the video – shot in the highly attractive scenery of Lazio, Abruzzo and the Canary Islands – reflects Dompé commitment to remaining in the forefront of the research for innovative therapeutic solutions for rare diseases.